Kids We Support

Month and Year of Birth: January 2016

Chetan is a 2 years and 6 months boy from Bhatkal. He had difficulty in judging the position of things when he was around 2 months old and soon parents noticed a white reflex in his left eye. He was diagnosed with bilateral RB. So far, He received 6 cycles of chemo and his left eye had been enucleated. He would need 3 more cycles of chemo to treat the tumor in the right eye.

Updated month: December 2018

Month and Year of Birth: August 2013

Prathyush is a 5 years old boy from Palghat, Kerala. Parents observed abnormality in the child’s eyes since birth. He was diagnosed with bilateral RB. Parents left no stones unturned to treat the boy in various medical centers in Kerala and his left eye had been enucleated. In the process, they had exhausted all their resources and could not follow-up further for two years. Tumor in right eye progressed and with the support of Iksha his treatment continued. His right eye had been enucleated in March 2017. He is now doing good and on yearly follow-up.

Month updated: December 2018

Month and Year of Birth: May 2015

Parents noticed a white reflex in left eye when he was 9 months old. He was diagnosed with unilateral RB. He received 6 cycles of Chemo and left eye had been enucleated. COP was done. He has good right eye vision and is on 6 months follow up.

Month updated: November 2018

Month and Year of Birth: May 2018

Bhuvi (From Udipi) was 3 months old when they consulted an ophthalmologist due to the watery eye. She was diagnosed with unilateral RB (right eye). They were referred to Narayana Netralaya for further treatment. Her right eye had been enucleated post 3 cycles of Chemotherapy. She has good left eye vision.

We wish for her speedy recovery.

The mother had RB and lost one of her eyes when she was only a few months old. They were not aware that RB is genetic disorder until Ishwari(first child) was diagnosed with RB when she was 3 months old.

Ishwari

Month and Year of Birth: Sep 2015

Parents noticed a white reflex in her left eye when she was 3 months old. She was diagnosed with bilateral RB. She so far received 17 cycles of chemotherapy and laser. She has no left eye vision but has good chances of salvage of both eyes and vision of the right eye.

Harshal

Month and Year of Birth: August 2017

Mother did undergo necessary tests during second pregnancy and results were normal, but doctors suggested them to take the child for a checkup after birth. Harshal was a premature baby, so they took him for an eye checkup as soon as he recovered and gained little weight. He was diagnosed with bilateral RB. He received 11cycles of chemotherapy. He has no right eye vision but has good left eye vision.

Month and Year of Birth: January 2011

Parents noticed vision problems, when she was 5 and half years old. MRI was done, and she was diagnosed with unilateral (left eye) RB at an advanced stage. She initially received 9 cycles of chemotherapy. She responded well to the treatment and tumor subsided. She was cancer free for a year. Unfortunately, Cancer re-surfaced in April 2018. She again received 3 Cycles of chemo and continuing her treatment.

Month and Year of Birth: August 2010

Amish was 3 years old when parents noticed common eye problems like watering and reddishness. He received treatment from a local doctor for 6 months. They consulted an ophthalmologist as there was no improvement in his condition. MRI was done, and he was diagnosed with bilateral RB. He received 6 cycles of Chemotherapy, Topotecan, and laser before tumor subsided. He was cancer free for about a year. Unfortunately, in the last few years, Cancer resurfaced a couple of times, but the fighting spirit of Amish and his parents has been commendable. He is receiving Chemotherapy and Topotecan with high chances of salvage of both the eyes.